We have contributed to the scientific research with 94,000€ in the last 6 years from OR Association to the Sant Joan de Déu Hospital.
The commitment to the investigation of Histiocytosis in Langerhans cells remains strong and firm.
We did this contribution / donation of 12,000€ on JULY 14, 2020, in favor of the Social Work of the Sant Joan de Déu Hospital in Barcelona with the aim of continuing to finance the research project on Histiocytosis in Langerhans cells.
We are pleased to be able to continue financing this year also all the work that has been carried out in the Hospital laboratory since 2014, the year in which we helped to launch this project, in the field of Histiocytosis. We share with the SJD its commitment to continue working, which always has its sights set on patients.
This is the result of the contributions and collaboration of many people and companies that support us.
This donation is made on behalf of, and thanks to the generosity of our partners, our donors and collaborators who support us so much throughout the year, and last year, in 2019.
All that we managed to fundraise is coming from the annual dinner, OR Association together with the Tibu-ron Group, which reached its fifth edition this year. By each tournament included in “Let’s score a GOAL to hte childhood cancer”. With the collaboration of Hard Rock Café on Sant Jordi day, in each activity, each music concert, the sale of bracelets, of books. In each contribution coming from the heart of all the people who throughout the year accompany us and fill our solidarity activities and contribute to later transform every contribution into these succulent figures!
This 2020 we managed to finance more projects!
This year 2020 we also managed to contribute with 10,000€ and launch a second research project on Histiocytosis. This one is in collaboration with Garrahan Hospital in Buenos Aires, Argertine. This study is based on Immunotherapy in pediatric patients with Histiocytosis. This study opens another big door in the search for solutions. This agreement includes collaboration with the project at the Hospital Sant Joan de Déu, everything that is based in research and includes internacional collaboration is in line with OR Association vision.
We will invest a total of 30,000€ to three central projects this year 2020.
As we dont stop, we added and planned an investment of 8,000€ in a new project, a https://orasociacion.org/proyecto-asistencial/support plan for caregivers and for families impacted by Histiocytosis. We are proud to be able to improve the quality of life of families: we offer personalized therapies for parents with psicologists, for patients and their siblings. We have designed a plan together with therapists who also lead groupal sessions, bi-monthly talks on different emotional themes. We also carry out all these activities ONLINE.
If our association is “in good health” it is thanks to the constant effort of all those who are committed with our work.
Today more than ever, living this exceptional situation created by COVID 19, we reaffirm ourselves on our way, knowing that the investigation of rare diseases such as Histiocytosis must not stop.
Thank you very much on behalf of OR and we continue, you have been warned, we will keep rockin high!
Fernando Gotz Cart, President of OR Association